Friday, January 16, 2009

Thursday & Friday. Sleep Wat meenz Sleep...

Still no idea what has my baby in its grips. Not that they aren't trying. 7 vials Wednesday and 4 more on Thursday and 3 more today, Friday. They are leaning towards liegonellosis 

http://en.wikipedia.org/wiki/Legionellosis

The pneumonia is starting to break up and they have backed off the ventilator and set it to an assisted breathing mode. Shes keeping her eyes open for longer periods of time and can track movement. When the doctors and nurses asked her to squeeze their hand and she couldn't, she started to pouty face cry. I feel so bad fer her because I know she cant understand why she cant make her body do what she wants...

You can see the fear in her eyes when she opens them. She doesn't understand all the things happening to her and it scares her so. I want to be there 24/7 and it tears my soul when I have to leave. I want to crawl in that hospital bed and hold her and tell her everything is going to be ok, but they wont let me...

Today was her birthday, but we're putting off celebrating till shes home. My mom and kids made a  board with pictures of us from Christmas on it. Her eyes got wide open and tracked around the board when we showed it to her. I cried.

The kids went in to see her and talk to her. She can move her head from side to side trying to find the source of the voice, but even these small things wear her out and she drifts off to sleep. She has a very infectious yawn that she has been showing everyone. A testament to how worn out she is from fighting this bug.

I also started reading the most bazaar choice of book to her. She has always wanted to read Fear and Loathing by HST but has never found the time to read one of the copies floating around the house, so I read her the first 5 chapters today. I hope this isnt a step backwards for her. Its a weird counter point to the bible that shes been hearing most of the time. They say she need mental exercise and I think that the swing of reading material is going to give her brain a workout.

They say if she wakes up a little more that they can take out the intubation tube. I know she hates this thing. Her tongue is doing double duty to try and get it out. They had to put a little plastic collar around it to keep her from crewing it in two. I will hear about that tube for the rest of my life, but I will gladly take whatever punishment she deems necessary for letting her be intubated.

Some good and not so good news from her doctor today. When she came in on Friday they told me that they gave her a 10% chance to make it. Oh man... She was below 6% in her lung capacity and the respiratory therapist told me he hadn't seen anyone that bad bounce back like she has in the 20 years he'd been doing this. BTW his name is Randy, and he was AWESOME!!! All of the staff at the hospital have taken such good care of my baby.

So I came home to recharge my life battery. Shes going to be a hand full over the next few days. We are just praying that she gets back full use of her grey matter and doesnt have any long term effects.

A note to those wanting to send money...

I cried at the thought of total strangers wanting to send my family anything. There are some very unselfish people out there in this world, and I think that God has a place for them. God knows your heart. But at this time I must graciously decline any offers of money. There are far more needy people in the world than us. I have a great extended family that will help us thru the times ahead.

Cards and flowers and such for Buffy...

You know. I never, NEVER knew how many people Buffy had touched on Deviantart. She has always been a kind soul and very supportive in everything, but she must have done something right over there. You guys have been amazing, and dont think I havent been telling her about all the posts and PMs that I've been getting. I'm going to print them all out so I can hang them in her room when she gets out of ICU. I dont know the names but she will. When she gets a room I'll get you guys an address to send stuff to. A few of you are chomping at the bit and that will go miles in her recovery.

Keep those prayers and good vibes coming. There is a miracle being done behind those walls.

3 comments:

Marcelo said...

Hang on man, I don´t really know what to tell you, how to tell you to be strong..to think positive to keep faith in doctors and god...

You are the one who is struggling throw this...you and your family and off course Buffy...i can only poorly imagine how this can be...

All my good thoughts and prayers from my wife Mariana are with you, Buffy and your family...

Send a get well to Buffy...

Captain Zaphod said...

Don't listen to the Dr's percentages.
Dr's said my handicapped son, would never learn to talk or read, and would never go to school.
This past June, he graduated from a regular, ordinary high school.
Prayer and a never say die attitude, which you seem to already have, will win the day.
My prayers are with you both.

Blessings,
-Z

Mecha said...

Sorry, I glitched. She's a fighter, and we still have her and your family in our prayers.